It has been 43+ months, or a little over 3.5 years, since I last saw and
held Matteo.
Sometimes, it hurts so deeply to say those words out loud. My heart jumps
into my throat the instant I acknowledge and type that nightmarish fact.
Other times, I am able to control myself and keep the sadness stored neatly
inside of me, so nobody has to clean up the mess.
I think about Matteo constantly throughout the day, every day, just as a
mother thinks constantly about any of her children that are not within arm’s
reach. It would be impossible to train a mother’s mind to
not obsessively wonder, care, or think about one of her children. It
would simply go against human nature.
Matteo was 18 months old when he died. And here we are 3.5 years later, and our
new baby boy, Marco, has now lived half of Matteo’s life.
I haven’t written a blog post focused solely on Matteo in a very long time.
Not because I don't have *content*. There are plenty of blog posts that could
be written, almost on a daily basis, solely devoted to Matteo, and life after
one of your children dies. Things happen throughout the day; you have
conversations with family, old friends and new friends; encounters with
strangers… and some of those moments will instantly start a thought process,
and an entire article unfolds in my head before I know it.
The fact of the matter is that it’s easier to just keep that tornado of
emotion inside my head. The process of writing my feelings about grief in an
organized, concentrated way can bring me down into a tunnel of gloom that often
times can be very hard to climb out of. And, I don’t want this blog to become a
sad/dark place. I want my children to be able to read through this blog someday
and know that we are (were) a happy family, despite having lost Matteo. I want
them to know how hard Matteo’s death was on all of us and how it changed us,
but that it didn’t destroy us.
One might think it gets easier to write about grief as time passes, or that
life gets easier to live again. I’m not sure it is possible to find peace, or
that time heals you after the loss of a child.
I haven’t found peace with Matteo’s death. Not yet. But, I have learned to
keep living every day with the pain of his loss.
Matteo’s death still cuts like a knife and knocks the wind out of me. It
brings tears to my eyes, makes my head ache, my heart sink, and my throat
swells with what could be an eruption of sobbing at any given moment, depending
on the day and the triggers. A song, looking through
photos, reading or hearing about another parent’s
loss, letting my mind wander, a question Gabby might ask… any of those things
can trigger my mind to begin replaying memories that will instantly torment and
rip me apart.
Sometimes, I feel like I held him just yesterday. I can still feel his
little foot in my hand. I spent most of July 4
th massaging that foot
as I sat with him nestled up against me. I had my left arm wrapped around him
and my hand holding his foot. It’s as if my hand knew it wouldn’t be able to
squish and love those feet for hours on end after that day. Matteo wasn’t feeling
good, and I was happy to spend the day snuggled up to him while Dan kept Gabby
and Rocco busy with errands and outside play.
I trimmed his nails, we read stories, we watched D.ora and D.iego. And, I
played with his hair a lot that afternoon. I would grab a few fingers full of
his hair and pull on the curls until I had them fully extended and straight.
Over, and over again. All the while, I had my head snuggled up against his so I
could feel his skin on my lips.
I love resting my lips on my babies’ foreheads when I snuggle them. There is
a magical, tender, connection this gives me. I love it.
I can honestly still feel Matteo’s chunky little foot in my hand. I can separate
my fingers and thumb to the exact size of that chunky foot.
I remember his favorite foods and the tricks we had to pull to get him to eat.
I remember his silly wiggle dance, and playing catch with him. I remember so
many scenarios of him and Rocco climbing in and out of boxes and bins, and
playing so well together. And ten minutes later, they would be making each
other crazy.
I remember his raspy voice and it gives me chills. I can hear it in the
quiet of the night. I can hear him singing the Dora song, and saying “Gobby”, “Cocco”,
and “Momma”, “Dadda”.
The past 3.5 years have been a flurry of ups, downs, and in-betweens.
Emotional highs and lows. Priorities have changed, as have many relationships. Our
family has grown with the addition of two beautiful, happy children to our
family. Yet, they could never come close to replacing the loss of Matteo. He is
an unfathomable loss.
Life has changed in so many ways for me, and for us.
The awkwardness of simple questions from a stranger, like “how many children
do you have?” will still stop me in my tracks. If you are a parent, you know
how often this question comes up. I always want to say “five”. But, in some
situations, I anticipate the risk of follow-up questions and will say “four”.
Always hating myself if I do—as if I am not acknowledging that Matteo lived,
and will forever be one of my children. I’ve learned the hard way that
answering “five” can be a slippery slope. For example, my dental hygienist thinks
I have five living children. I never expected her to remember how many kids I
had. But, I just don’t want to delve into the discussion that follows breaking
the news that one of those children died at 18 months of age, while sleeping.
Pregnancy came with another set of problems. You become a magnet for strangers
to ask you very personal questions. I loved the attention when I was pregnant
with Gabby, and even the twins. “When are you due? Is this your first? Boy or
girl?” Those questions were FUN to answer back then. But, after you have a
child die, those questions from a stranger open a whole new can of worms. I was
13 weeks pregnant with Giuliana when Matteo died. And, I hated and wanted to
sob every time a stranger asked me those questions. I felt like everyone was
being so invasive and insensitive. I wanted to shout “One of my baby boys just
died! Leave me alone!”
When I was pregnant with Marco, I was more annoyed than anything. I felt
like I couldn’t go out in public without getting questioned by at least 2
strangers “Is this your first?”, “How many do you have?” When I would answer “five”,
I’d get the shocked face response, and most often a “Wow, you must be BUSY!” Sometimes,
I just wanted to say out loud “well one of them died… so I’m not as busy as I
should be.” I’m sure that would have ended the conversation.
I also had days during my pregnancy with Marco when I felt like I could
never
really be happy anymore. My
guess is that sadness was the result of a mix of pregnancy hormones, grief, not
getting my regular dose of endorphins from running and the Pacific Northwest
weather. For instance, I recall being on a trip with my girlfriends in January,
and several times I literally laughed until I cried. I was trying so hard to be
happy. They thought I was laughing so hard I cried. I think the truth was that
I was crying more than laughing. I was trying so hard to be happy and laugh,
but I couldn’t bottle the sadness. It came out with any emotion.
Three and a half years. Almost as old as Giuliana. Giuliana will forever be
6 months younger than the time associated with the anniversary of Matteo’s
death.
Rocco is now five. Gabby is now seven. Matteo should be five too.
Your child dies. You gain a new respect for life. A new appreciation for
life, and a sense of wonder about it. When you look up at the moon and stars at
night… you wonder if your child is out there. You contemplate how really tiny
and small we (humans) really, truly are. You start to not care so much about a
lot of things. And other things, the important things, are what you focus on.
When your child dies, and the coroner can’t tell you how/why your child died,
but you know your child had a virus, you become a bit more obsessive about
germs. I get great anxiety when my little people are sick. PTSD. I don’t sleep.
I’m short with Dan. I’m stressed. And, I’ll check the sick child throughout the
night to the point of it being a crazy obsession because I fear another child
dying in their sleep. Though, I would never tell my children that.
My PTSD has gotten a little better. Granted, Marco has not yet had a fever.
Hopefully, I can remain calm and not get too stressed when he has his first
unexplained high fever. And, I pray that doesn’t happen until he’s 18. Eighteen
YEARS OLD, that is.
:)
My children wash their hands every time they enter the house. It is habit to
them now—I don’t even have to ask them to do it. I get frustrated when
strangers touch my infant or itty bitty child’s hand. I want to say “Hello, do I
know you?! And, when is the last time you washed your hands? Are you sick? Have
you been around someone sick? Then please DO NOT TOUCH my baby’s hand or give
them food that you have just touched. Don’t you realize this child is not fully
vaccinated yet?!”
Since Matteo’s death, I imagine my parenting has changed. I imagine I hug my
kids a little longer, snuggle a little more, and feel a little worse when they
are upset or hurt (whether their pain is physical or emotional). I am probably
a little more protective than the average parent. And, I imagine I probably
want them to get every ounce of joy they possibly can out of life, and that
includes making the best of awful situations… because Matteo doesn’t have that.
He was cheated out of life. And, I feel like we all owe it to Matteo to try and
make every day a good day.
Life has me so busy these days—it’s probably a good thing. My mind doesn’t
have time to hang out in the dark tunnel of grief. Days/weeks pass by at warp
speed. Keeping up with four children, school, their activities, and taking care
of them and a home… jeesh… there just aren’t enough hours in the day to get
everything done.
Running remains my happy place. I literally NEED that runners high at least
4x week or I get grumpy. It’s my time. I can let my mind wander, talk to
Matteo, think without interruptions. It’s like my own personal therapy session
because I ALWAYS feel great when I’m done. (Or maybe it’s just the joy of being
by myself for an hour! Ha!)
Gabby misses Matteo. She still has moments where she will get very sad and
cry because she misses him and wishes he didn’t die. She gets sad when she
looks through MAtteo photo albums, or hears certain songs that have been
associated with Matteo’s life/death. Having seen and witnessed more than any
child ever should, his death is still very impactful on Gabby’s life. She
freaks out if one of her siblings gets hurt or is bleeding. She worries when
they are sick. If we have to bring someone to the ER, she is asking if they
will come home again. Her fears have faded a bit with time, but they are still
there and we still have to parent/counsel those situations carefully. We find
ourselves having to reassure her less with time, that what happened to Matteo
is not going to happen again to any of her siblings. Gabby loves watching
videos with Matteo in them. It can be a slippery slope though… sometimes, she’ll
be laughing at him and the video, and sometimes watching the videos can make
her sad. Same goes for me.
Rocco often talks about Matteo. He asks a lot of questions about Matteo, and
about how him and Matteo were as twins. He’ll ask questions about how they
played together, who was born first, and how I gave them baths or fed them in
high chairs next to each other. He likes to look at photos of him and Matteo.
He enjoys seeing videos. I am not yet sure if he has or will carry memories of
him and Matteo with him through life. He’s not quite at an age yet where we can
sit down and question his memories of Matteo. Or, if we look through photos
with him, I’m not sure he would be able to honestly tell me yet if a photo sparks
a memory of Matteo. He knows Matteo is his twin. He talks about him often, and
how they were best buddies. He will talk about Matteo when he sees the moon.
And, he says goodnight to Matteo every night when he goes to bed.
Giuliana associates Matteo with the moon and the stars. And, if you ask her
about the little red birthmark on her hand, she’ll tell you that’s where Matteo
kissed her before she came out of mommy’s womb. The birthmark looks like a
little kiss. It has faded a bit with time, but it’s still there. She thinks of
Matteo as an angel. She never knew him otherwise. She is also smart/old enough to
know that Matteo can often be a sad topic, as she has been known to say “I’m
sad because I miss Matteo.” (Clearly picks up on big sister’s emotions/actions/words.)
So, then we’ll talk about how wonderful, sweet and special Matteo was until we’re
happy again.
The moon has special meaning to Gabby, Rocco and Giuliana. It always sparks
a thought, comment or question about Matteo. Balloons are also significant. Whenever
the kids have balloons in-hand, they will ask to let them go to Matteo in
Heaven. They are convinced Matteo pulls the balloons into Heaven with him the second
the balloon disappears.
The moon, a balloon, and Matteo’s profile all make up
Matteo’s Dream Fund logo.
If anything good can come out of the tragedy of Matteo’s death and the grief we
will always carry in our hearts, it has been this non-profit organization.
Matteo’s Dream Fund has allowed us to keep Matteo’s memory alive. It has
allowed us to raise money for sick and terminally ill children, and their
families and provide support to in-hospital schools, recreation therapy, and
grief support and counseling services at a few children’s hospitals.
Matteo’s Dream Fund has also been a positive experience for the kids. They
have felt the joy of delivering gifts to a children’s hospital around the
holidays. And, what better way to teach them “when life give you lemons, you
make lemonade.”
I talk to Matteo every day. I think about him every minute of the day and he
is the last person I talk to every night. I ask him to watch over our family,
and keep our children safe and healthy. He is an angel. He is
our little angel.
I
hate that we have an angel. He
should be here with us.
I miss you so much, Matteo. I love you to the moon and back.